Starting Steroids Tomorrow

Vivian has had more seizures this evening :(

Finally got her to sleep about an hour ago; hoping she stays asleep and rests up so she can have a good feed, as they really make it hard to get her settled and to sleep which affects her eating because she gets over tired.

Looks like we will be filling the prescription for the prednisone tomorrow morning and starting down that road. I am really worried about what this will do to her. I know that if it stops her seizures it will be worth it, but I’ve read so many stories about side effects and just the rough time overall that they cause.

I am trying so hard to stay positive, but I am so sad tonight.   I managed to find a place offering free counselling and began going last week. It has helped some. On days like today it feels like we are back at day one though. Like we’ve been put back in the middle of a bad dream that we can’t wake up from. We’re reminded that Vivian won’t have a normal, healthy life. It’s easy to forget when we’re taking care of Vivian on a good day. But on nights like tonight, when I remember, it’s so hard.

Please keep your fingers crossed for her that she makes it through this without getting really sick.



2 Comments (+add yours?)

  1. bethie
    Aug 25, 2014 @ 01:59:42

    Thinking of you all. Really glad that you’re going to counselling, as hopefully it will give you clarity and peace about the unknown. Much love.


  2. Rebecca
    Aug 26, 2014 @ 13:13:12

    hopefully things are going a bit better! if it’s any help, my daughter has been taking steroids her whole life (for a different kind of health issue and not prednisone..) but you have to weigh the side effects vs the benefits!


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